Oireachtas Joint and Select Committees

Wednesday, 24 April 2024

Joint Oireachtas Committee on Health

Health Services for Persons with Lung Fibrosis: Discussion

Mr. Robert Hurley:

Yes, but I get it back. Unfortunately, I have to pay for it, and it costs €300 per month. I pay €1,200 on my credit card. I pay that straightaway. As soon as I pay that, I have to download forms, fill them out and get copies of the receipts of the drugs I have already paid for. Sometimes they do not come so I have to go back to the chemist and get copies of them. I have to get copied statements from the supplier to show they were paid for. If I did not, I would not be seen. I have to photocopy that and keep a copy because I need to get my tax back afterwards. I then post it away and will get a text. I will then get a letter saying that details will be sought. For example, I got one on 1 April. Yesterday, I got a letter to say that if I do not receive any correspondence by 15 May to contact a reference number. It always comes in by cheque at the end of May. You are talking about two months. I then lodge the money to cover my credit card. That is how I survive. It is a total waste of time and management. There is a huge amount of paperwork.

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