Oireachtas Joint and Select Committees

Wednesday, 28 February 2024

Joint Oireachtas Committee on Health

Health Services for People with Epidermolysis Bullosa: Discussion

Photo of Seán CroweSeán Crowe (Dublin South West, Sinn Fein) | Oireachtas source

-----he parking disc and all those issues. I was also struck by the idea of bandages being delivered in another jurisdiction. It will be useful to get a sense of how much that would cost the Exchequer. These are all issues that the committee can certainly follow up.

If there is anything else the witnesses feel they missed this morning, they can treat this meeting as the start of a conversation with the committee. It was very useful, certainly for anyone listening at home, to know that these families have not been forgotten. We are concerned about what families and loved ones are going through.

It is positive news for all the families in question that there are possible research outcomes down the road. There is much we can still do while waiting for that. We heard about specialist nurses and particular attention needs to be paid to that. I hope the committee, in its report on today's meeting, will make positive recommendations in that regard.

I thank the witnesses for their time and engagement with the committee this morning. This has been a useful session. I hope we will be able to follow up with some positive news for the families who are in this situation. I again thank the representatives of Debra Ireland for their engagement with the committee on this important matter.

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