Oireachtas Joint and Select Committees
Wednesday, 28 February 2024
Joint Oireachtas Committee on Health
Health Services for People with Epidermolysis Bullosa: Discussion
Dr. Rosemarie Watson:
The patient referred to by Dr. Hickey addressed this very well when she said that she just dreads her mother coming into the room. People know it is bandage day and that is a big fear because they are inflicting pain and everybody is upset; the child is upset, the parent is upset and the siblings are upset. It is about having an extra person who can take the time to make sure the pain medications are in there before they start with the bandage. There are tricks to help not pulling off sticky bandages by soaking them for X amount of time. An objective person like the nurse can look at the environment, put on music and do anything that will lessen the discomfort and pain during that time. Unfortunately, it is there, and they have to go through those dressing changes or, otherwise, they face infection and the complications of that. It has to be done, unfortunately.
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