Seán Crowe (Dublin South West, Sinn Fein) | Oireachtas source

As Senator was saying, the first time he came across EB was a number of years ago. The first time I actually heard of it was a long time ago. A cousin of mine was having a significant birthday and he decided that we would all donate or pay in to his party. It was a fundraiser for Debra and he outlined to us that night the nature of this genetic disorder. We all came away having not only enjoyed the night but also feeling that we had done something positive for a really good cause. I urge anyone who wants to mark a significant birthday to think about doing the same thing.

I have a couple of questions. The witnesses referred to the impact of the disorder and mentioned diet in particular. I ask them to expand on that. Are there certain foods that can be eaten or not eaten?