Dr. Rosemarie Watson:

Debra continues to work on that and is to be commended on all the work it does to bring joy to the families of people with EB. It runs so many programmes, including at Barretstown, and is just wonderful. We would not have the services we have today without Debra. It really got us on the road and has raised the awareness of EB so that people, including my friends who know nothing about medicine, have heard about the butterfly children. It is a credit to Debra. Thanks must also go to the HSE for funding the programmes for us, which has made a huge difference.