Dr. Sin?ad Hickey:

EB is a rare disease so it is important that the international rare disease EB community works together. Crumlin is an expert centre that is part of the European reference network for skin. A group of European dermatologists work together to troubleshoot for EB. Debra International brings a lot of the experts together to publish clinical practice guidelines that can be used not only in developed countries but also in those countries that do not have clinical services for EB.