Oireachtas Joint and Select Committees

Wednesday, 28 February 2024

Joint Oireachtas Committee on Health

Health Services for People with Epidermolysis Bullosa: Discussion

Dr. Sin?ad Hickey:

There is a product that is with the NCPE at the moment and a number of people in Ireland are using it on a compassionate use basis. If it is approved for reimbursement by the NCPE we hope that it will be rolled out to all patients with severe forms of EB.

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