Oireachtas Joint and Select Committees

Wednesday, 28 February 2024

Joint Oireachtas Committee on Health

Health Services for People with Epidermolysis Bullosa: Discussion

Photo of Bernard DurkanBernard Durkan (Kildare North, Fine Gael) | Oireachtas source

To what extent is access to rare or orphan medicines required? Are such medicines available and is access to them ongoing? What are the expectations of the witnesses in that area in the short term?

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