Oireachtas Joint and Select Committees

Wednesday, 28 February 2024

Joint Oireachtas Committee on Health

Health Services for People with Epidermolysis Bullosa: Discussion

Photo of Gino KennyGino Kenny (Dublin Mid West, People Before Profit Alliance) | Oireachtas source

I welcome Ms Rachel Connors and Casey Connors to the Public Gallery. We will have a chat with them later on.

I thank the witnesses for attending. It has been a very enlightening meeting, and fair play to them for all of the great work they do.

I will ask questions that the other members have not had answered because I am the fifth or sixth member to speak in a row. On environmental conditions for somebody with epidermolysis bullosa, direct sunlight would obviously be detrimental, although perhaps I am wrong about that. With regard to environmental factors, what role does they play? Does exposure to sunlight play a role for the sufferer?

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