Oireachtas Joint and Select Committees

Wednesday, 28 February 2024

Joint Oireachtas Committee on Health

Health Services for People with Epidermolysis Bullosa: Discussion

Dr. Rosemarie Watson:

The place we have gaps is the community services. There is no doubt about that. The Deputy asked about funding in that regard. Again, the HSE has listened and given us a funding package. All newborns with severe EB get that package, which is wonderful. The package has some problems, however. A newborn gets the same package as a person who is 18 years of age, for example. Nursing requirements and so on change through that time. We need more flexible packages. We will have to go back for that battle.

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