Oireachtas Joint and Select Committees

Wednesday, 28 February 2024

Joint Oireachtas Committee on Health

Health Services for People with Epidermolysis Bullosa: Discussion

Photo of Pauline TullyPauline Tully (Cavan-Monaghan, Sinn Fein) | Oireachtas source

My time is up, but I quickly mention the economic burden on people with EB is massive. I assume it means having to purchase all the services.

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