Oireachtas Joint and Select Committees
Wednesday, 28 February 2024
Joint Oireachtas Committee on Health
Health Services for People with Epidermolysis Bullosa: Discussion
Pauline Tully (Cavan-Monaghan, Sinn Fein) | Oireachtas source
The witnesses identified the fact that there are insufficient carers in the community and we know that. Do we not need to see specially-trained carers with EB? If there is a changeover between carers at all, it means somebody starting from scratch not knowing the extent of the situation. We hear from the Department all the time that the money is available but the carers just are not. Is there a possibility of looking at specially-trained carers for people with EB?
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