Ms Deirdre Callis:

If it was included in the long-term illness scheme, it would allow all families living with all types of EB to be able to access the medication, the dressings and the equipment specific to their type of EB. Currently, as Dr. Hickey and Dr. Watson said, a whole cohort of people are missing out. They earn too much to get the medical card and they are falling between the cracks. The long-term illness scheme would absolutely align with what we think is the right direction for people living with EB.