Oireachtas Joint and Select Committees

Wednesday, 28 February 2024

Joint Oireachtas Committee on Health

Health Services for People with Epidermolysis Bullosa: Discussion

Dr. Sin?ad Hickey:

From the bandaging point of view, there are. People living with severe forms of EB have the cost of their bandages covered under the medical card however people living with less severe forms such as the EB simplex still pay out a lot of money on bandages though not as much as those with the severe forms. However, they may not qualify for the hardship scheme or the medial card but also these bandages are not covered under the drugs payment scheme, so they just have to buy them in their pharmacy. A small tube of Cavilon costs €20. When you are putting Mepilex and Tubifast on top of that then, the costs do add up therefore we are looking into putting these onto the drugs payment scheme.

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