Oireachtas Joint and Select Committees

Wednesday, 28 February 2024

Joint Oireachtas Committee on Health

Health Services for People with Epidermolysis Bullosa: Discussion

Dr. Rosemarie Watson:

It will be shown that this person will link with the community. At the moment, Debra Ireland pays for 12 counselling sessions for people with EB. It is mainly the adults who need it because we have a psychologist in place in paediatrics. People very much want care close to home and we are very attuned to that but we need a psychologist who has an understanding of the whole world of EB who can link with the community. They support each other.

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