Oireachtas Joint and Select Committees

Wednesday, 7 February 2024

Joint Oireachtas Committee on Health

Health Needs of Persons with Dementia and the Services Available: Discussion

9:30 am

Dr. Laura O'Philbin:

Yes. Other countries have dementia registries and they have invested in them. It is incredibly complex to set up something like a dementia registry. I do not believe we can shy away from how difficult that work would be. In 2018, we conducted a feasibility study carried out by DCU and supported by the Alzheimer Society of Ireland. Further work was invested in this in 2021. Out of this work came a minimum data set, which is very important. We can show the minimum information we would need to make a dementia registry work. There is Covid, GDPR and lots of other things tied up in the development of a registry but it is something we would all love to see.

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