Oireachtas Joint and Select Committees

Wednesday, 28 June 2023

Joint Oireachtas Committee on Health

Services for the Treatment of Endometriosis: Endometriosis Association of Ireland

Mr. Damien Donoghue:

With regard to Sláintecare, we are doing massive reform. As has been mentioned, the voice of the patient is missing from this conversation. On training and education, I am a nurse and I only became aware of endometriosis through my partner's journey. From a male perspective, we are not aware of it. I am a nurse and I was not aware of it. To me, that sets off alarm bells. From the perspective of Sláintecare, we were not consulted. What do the supraregional centres mean? Who is going to be there? How is training going to take place? It is a question of capacity. Have we gathered and collated the data on what we are dealing with? There is a waiting list for every specialty. We have to get a handle on the numbers we will be dealing with. Are those supercentres alone going to be sufficient? I do not think so. There is a lot of guesswork involved. The first principle of Sláintecare is that the patient is paramount but we are the patient's voice in this regard and we are not at the table. That is important to recognise.

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