Dr. Geraldine Canny:

It would not be of great interest but it would enable longitudinal study because treatment will depend on the stage of life. A woman who is perimenopausal will not have the same needs as a recently diagnosed teenager. In that context, there are ethics questions around the obtaining and storage of data. If such studies involve surveys of individuals with the disease or a control group, ethics authorisation would be necessary prior to commencing. In that case, there would need to be collaboration with, for example, an academic institution.