Oireachtas Joint and Select Committees
Wednesday, 10 May 2023
Joint Oireachtas Committee on Health
General Scheme of the Health Information Bill 2023: Department of Health
Ms Roisin O'Neill:
Both in the health information Bill and to align with the regulations proposed at European level and the EHDS regulation, there is a list of when anonymised data is accessed by research, what it can be used for - permissible purposes and prohibited purposes. At EU level, we have been working to try to ensure that among those prohibited purposes is access by an insurance company or mortgage broker for non-health-related purposes to potentially increase premiums. We are actively working to ensure that type of use of research data and anonymised or personalised data is not accessed by those entities.
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