Neasa Hourigan (Dublin Central, Green Party) | Oireachtas source

I want to go back to access for research. I am unashamedly coming at this from a position where I would like to see a lot of access. I want to protect everybody's privacy and see disaggregated data of course but I would like reasonable access for researchers. I went down a rabbit hole on data matching and how some of it works. Will the witnesses provide some detail on how accessible disaggregated data would be? What type of permissions does it require?

We are giving effect in a way to the data access, storage, sharing, linkage, DASSL, model that emerged from the Health Research Board, HRB. It is intended to support population-based, high-quality research of scale. We envisage there will be governance arrangements through which researchers or other interested parties, such as scientists and policymakers, could submit requests for particular data sets. The national health information authority would have access to the data at an individualised level and would be able to match data on the basis of IHI moving to PPSN. After the matching of the data, it would generally be totally anonymised or perhaps pseudonymised if there was a case for that. That would be made available for the purposes it was requested for.