Martin Conway (Fine Gael) | Oireachtas source

Dr. Henry might be able to help with the next issue I want to raise. On 18 March 2021, the Minister met with representatives of the Irish Haemochromatosis Association. One of the things they asked for is to have a point of contact with whom they could engage. At one stage, Dr. Henry was their point of contact but I understand that is no longer the case. The association is not expecting somebody at that level to be a point of contact but, given nearly 200,000 Irish citizens are carriers or have haemochromatosis, there is a need for a national strategy. That has not happened. We also need a national screening programme and for haemochromatosis to be considered a long-term illness, which it is. I would like a comment on that.