Dr. Karen Foley:

Every organisation, whether disability or mainstream, has forms to fill in and lots of work to be done to bring it together. A case manager or person in the middle would be the one point of contact. The support would naturally wane as you go along that journey but, as life changes inevitably happen down the road, the person is potentially available to you to link back in with and re-access specialist support from somebody who knows what you are going through and what is to be expected. The case manager can link you in with peers who can also support the journey, have been there and would like to support others in that situation. It sounds like a simple solution but is extremely effective. The other elements of the pathway need to exist for the case manager to support the person and family to access what they need. It is a significant step in the journey if we are talking about solutions that help us remove some of the barriers people with disabilities face.