Oireachtas Joint and Select Committees

Tuesday, 31 January 2023

Joint Committee On Children, Equality, Disability, Integration And Youth

Disability Services: Discussion

Ms Cara Steinmetz:

I might add to a point Ms Moran made. One feature of Down's syndrome is it is diagnosed at birth, so we know from birth if our child has Down's syndrome. There are specific requirements every child with Down's syndrome has and these transitions will arise for every child with Down's syndrome. It would help if we could plan that journey, irrespective of the fact services are overburdened and there is poor access to the services. Even a path outlining who to contact at the end of this transition and the next one, where to go when we are looking towards secondary school and perhaps resource or support material that could be provided for parents would, in itself, be a great burden taken away from parents.

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