Oireachtas Joint and Select Committees
Wednesday, 22 June 2022
Joint Oireachtas Committee on Health
Rare Diseases: Discussion (Resumed)
Bernard Durkan (Kildare North, Fine Gael) | Oireachtas source
Is it feasible to have a centre of excellence in Europe, in this country or somewhere similarly located, with which the medical profession and patients, if necessary, could make contact with a view to identification of a disease, diagnosis, early diagnosis and treatment? Where can we get information on orphan drugs? Is it possible to get it from a central location in such a way that it would be of benefit to the medical profession?
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