Oireachtas Joint and Select Committees
Wednesday, 22 June 2022
Joint Oireachtas Committee on Health
Rare Diseases: Discussion (Resumed)
Seán Crowe (Dublin South West, Sinn Fein) | Oireachtas source
One of the criticisms from some of the groups concerns the lack of expertise. It probably touches on what Deputy Burke said about there possibly being expertise in Ireland on some issues. What is the process for beefing that up? For instance, we regularly meet with people from various groups outside Leinster House. People with Lyme disease, which is a disease that is quite common in Ireland, fall within that category. Their criticism is that we are not good at identifying many of these rare diseases. Is there a process to look at how we can improve that and so on? Is it back to the issue of screening or is it recommendations from the HSE, when it comes to that?
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