Dr. Ciara Martin:

That is where our NRDO has its strength. That was initially set out in the 2014 to 2018 plan to support families when they been faced with a rare disease diagnosis. That is the resource that we provide for them through the NRDO. That is where to go for official support. They will guide you to where you can get support. They will put you in contact with patient advocacy groups across the world that are legitimate. They will put you in touch with or they will give you the details of what specialists legitimately looking into that area of rare disease. They will support you through that journey. That is one of the key functions of our NRDO. It has been set up together with patients, carers, families and clinicians.