Oireachtas Joint and Select Committees

Wednesday, 22 June 2022

Joint Oireachtas Committee on Health

Rare Diseases: Discussion (Resumed)

Photo of Seán CroweSeán Crowe (Dublin South West, Sinn Fein) | Oireachtas source

The area of orphan drugs, which was touched on earlier, is one of great anxiety. The technical review committee, TRC, for rare diseases is responsible for the drugs being approved for reimbursement. One of the criticisms that people have is that it meets infrequently. Is that the case? It can deliberate for some time. Are there any plans to reform or review this committee? I suppose everyone wants to speed up this process as much as possible. Does this committee just meet when there is a particular-----

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