Dr. Ciara Martin:

When we have a patient with a rare disease in Ireland, the research networks will reach out across Europe to other areas where patients with similar conditions will be presenting in order to combine their research, their clinical trials and their knowledge. From a clinical point of view and from the point of view of being able to support families and caregivers, that is going on now across the clinical sphere. In fact, a conference on that issue is happening at the moment.