Oireachtas Joint and Select Committees
Wednesday, 22 June 2022
Joint Oireachtas Committee on Health
Rare Diseases: Discussion (Resumed)
Seán Crowe (Dublin South West, Sinn Fein) | Oireachtas source
Perhaps that is something that we might follow up, as a committee. The rare disease plan predated Sláintecare. I welcome the fact that the HSE is working with the Department of Health in developing an updated plan for rare diseases. I also welcome the fact that Dr. Martin made a statement about the involvement of patients and families living with rare diseases within the fundamentals of the new plan. I hear the frustration of many of the families in that regard too. I call Deputy Durkan.
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