Oireachtas Joint and Select Committees

Wednesday, 22 June 2022

Joint Oireachtas Committee on Health

Rare Diseases: Discussion (Resumed)

Photo of Frances BlackFrances Black (Independent) | Oireachtas source

That is fantastic. I thank Dr. Martin. The progress on the European research networks sounds quite positive, especially the psychosocial support. Have there been any studies or reports of patients' experiences engaging with this system? Will the officials speak about any personal insights they might have?

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