Frances Black (Independent) | Oireachtas source

I thank the witnesses for their very precise presentations. I was going to touch on some of what Deputy Crowe spoke about relating to young people. The question was answered very clearly so I thank the witnesses for that. As legislators, we see people with rare diseases. It is devastating to see that their families and supporters have to lobby and protest to get access to certain drugs. It creates a highly adversarial relationship between the patients and the institutions responsible for their care and places a great burden on people who are struggling. As Deputy Crowe said, it is a life-and-death situation. Is there anything we can do to relieve them of this burden or how can we do that?