Oireachtas Joint and Select Committees
Wednesday, 22 June 2022
Joint Oireachtas Committee on Health
Rare Diseases: Discussion (Resumed)
Mr. Shaun Flanagan:
I cannot give a timeline and it would be unfair to give one. At all points, the HSE is trying to provide access to as many drugs as it possibly can. Particularly in this portfolio and in dealing with this company, we have tried to provide access for every patient we can within the resources available to us. We are committed to continuing to do that and to engaging with Vertex for as long as it takes but I cannot give a guarantee on outcome because there are two parties to the negotiations.
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