Oireachtas Joint and Select Committees

Wednesday, 22 June 2022

Joint Oireachtas Committee on Health

Rare Diseases: Discussion (Resumed)

Photo of Colm BurkeColm Burke (Cork North Central, Fine Gael) | Oireachtas source

I thank our guests for making themselves available and for the presentation. I just want to go back to the national rare diseases plan. My understanding is that there is not any one person in the Department of Health who is in charge of national rare diseases at present. Is this causing its own problems for the HSE in regard to progressing the review of the national rare diseases plan?

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