Oireachtas Joint and Select Committees
Wednesday, 22 June 2022
Joint Oireachtas Committee on Health
Rare Diseases: Discussion (Resumed)
David Cullinane (Waterford, Sinn Fein) | Oireachtas source
There has not been an update in eight years. It is important that the HSE leads on any update of the plan. We should not be waiting for the Department of Health to appoint somebody to lead it. If that is required, the HSE needs to be injecting some urgency into the matter. From talking to patient organisations, I know that they are ready to roll up their sleeves and play their part in updating the plan. Is there are any timeframe for when that will happen? Who will lead on the update?
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