Oireachtas Joint and Select Committees

Wednesday, 22 June 2022

Joint Oireachtas Committee on Health

Rare Diseases: Discussion (Resumed)

Photo of David CullinaneDavid Cullinane (Waterford, Sinn Fein) | Oireachtas source

There has not been an update in eight years. It is important that the HSE leads on any update of the plan. We should not be waiting for the Department of Health to appoint somebody to lead it. If that is required, the HSE needs to be injecting some urgency into the matter. From talking to patient organisations, I know that they are ready to roll up their sleeves and play their part in updating the plan. Is there are any timeframe for when that will happen? Who will lead on the update?

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