Oireachtas Joint and Select Committees
Wednesday, 22 June 2022
Joint Oireachtas Committee on Health
Rare Diseases: Discussion (Resumed)
David Cullinane (Waterford, Sinn Fein) | Oireachtas source
Okay. We will try again.
In the context of the national newborn bloodspot screening programme, the witnesses may be aware of a Bill brought forward by Senator Norris some years ago that was working its way through the Seanad. It seems that Bill has fallen off a cliff. It would have required the national screening advisory committee, NSAC, to prepare a report and make recommendations to the Minister for Health to expand the range of conditions tested by NSAC within six months. We need legislation in this area. We need to improve transparency and accountability in respect of NSAC. Is it true that the committee has made only one recommendation so far to expand the screening programme?
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