Oireachtas Joint and Select Committees
Wednesday, 22 June 2022
Joint Oireachtas Committee on Health
Rare Diseases: Discussion (Resumed)
Seán Crowe (Dublin South West, Sinn Fein) | Oireachtas source
I appreciate that. One of the frustrating things for families in Ireland is we have many pharmaceutical families producing the drugs. We are talking about cents to produce the drugs but they charge an absolute fortune to the people of Ireland when they try to access those drugs.
I am conscious we are running out of time but before Dr. De Block goes, is the screening programme for rare diseases mainly the heel test in babies or does other screening go on as well?
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