Seán Crowe (Dublin South West, Sinn Fein) | Oireachtas source

-----so there is probably an argument for an EU-wide negotiation. However, Dr. De Block was saying that might delay things even further. She is saying the approach at the moment is the smaller countries coming together and using that bloc to try to negotiate. Would she be opposed to an EU approach to some of these rare diseases?

The other question is whether there is a pattern in Belgium of big pharma companies putting pressure on the political system to authorise a drug by using families and those who are affected by it. That is the other big challenge being faced by those of us who want to see these drugs being more available.