Ms Linda Whitmarsh:

I am not sure how to answer that question. I will try my best.

I am not a campaigner; I am just a mum. We started our campaign five weeks ago. It started as a Facebook page for support that we were putting resources up for speech and language therapy and OT. My frustration and hearing everyone's story started this campaign five weeks ago. We had a local meeting and got parents to attend via social media and everything like that. We are campaigning to try to get awareness in services.

We do not get any funds or support from anyone. We are not providing a service for people apart from support and advocacy, and listening to them, which is important. In terms of funding, it would be nothing even though last week was a hectic week in preparation for this week and we have a presentation in the audiovisual room next week. From a working point of view, last week I put in at least 40 hours in campaigning and sending emails.

The HSE is actually referring people to our committee. This goes to show how the progressing disability services, PDS, system is. I know it is funny but it is not funny.