Ms Alana Ryan:

Termination For Medical Reasons, which is the group of families affected by this, has said that it is quite challenging to appeal a decision, especially in very time-limited circumstances. While the right to appeal is there, and that avenue exists, it is not accessible and it means that when you are up against a very tight time limit, particularly if you know that you most likely have to seek care in England where there are also limits, you are most likely going to travel because you would be worried that if you delayed and continued down the route of trying to appeal a decision in Ireland, you might end up being ineligible here. Then you would be in a terrible situation where you might have lost your ability to travel to access the care elsewhere and you would have been denied it at home.