Oireachtas Joint and Select Committees

Thursday, 3 February 2022

Joint Oireachtas Committee on Disability Matters

Equality and Non-Discrimination: Discussion

Photo of Fiona O'LoughlinFiona O'Loughlin (Fianna Fail) | Oireachtas source

I thank the witnesses for their important engagement. I have certainly learned a great deal, in particular from Ms Dennehy and Ms Levin, because I would not really have been aware of the issues they have spoken about regarding direct exposure to LED.

LED is everywhere and will increasingly come onstream so I can only begin to imagine its impact in terms of trying to carry out the functions of daily life. Ms Dennehy has said that she had to move home and that is really a difficult situation to be in. I imagine that local authorities have a big role to play, particularly in terms of street lighting, etc.

Deputy Tully made a point about universal design. This committee has had presentations here and we, as a committee, have been very strong advocates for the introduction of universal design to meet the challenges and issues concerning people who have types of disability. Sensory disability is a different type of disability that has come within our scope. I believe that sensory disability needs to be incorporated and I ask the witnesses to comment on that.

I am aware of issues that had an impact on the lives of people with thalidomide, and of course I am aware of the history and background. A number of years ago I met a young man, who is the same age as me, with thalidomide and I worked with him to address some of his challenges and issues. At that time I was quite shocked to learn that there were not more State supports available. I was absolutely shocked that people with thalidomide did not have automatic access to a medical card and had to fight for it every two years. This particular gentleman sought free travel as he lived 60 miles outside of Dublin city and needed free trade to access medical appointments, etc. We fought his case on a number of levels but did not get anywhere so I totally understand the needs and challenges.

The unmet costs of living with thalidomide are quite high. Perhaps the association could comment on that. Please also outline the appropriate care interventions that are needed and the existing gaps. These matters may have been covered when I stepped out of this meeting to attend to another duty and I am interested in hearing all responses.

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