Ms Olga Wehrly:

There is some really groundbreaking stuff being done in the US on EDS. There is hope that a genetic marker can be found from the subtype hypermobility EDS, which is kind of classed as less severe.

My computer switched off and I had to restart. Deputy Higgins asked about days off from work. Many people with long Covid have surpassed their annual leave allocations and are now on to unpaid leave because they have taken all the sick leave they can. They are in a little bit of a quandary and that number will only increase where people are unable to work or do very much, as was the case for many of us. It is something that must be highlighted or addressed at some level because many people are just left floundering without income. They are stuck.