Oireachtas Joint and Select Committees

Wednesday, 26 May 2021

Joint Oireachtas Committee on Health

Rare Diseases: Discussion

Photo of Cathal CroweCathal Crowe (Clare, Fianna Fail) | Oireachtas source

I thank the Chairman. I confirm that I am in the precincts of Leinster House. I had another meeting that meant I missed a large part of this discussion, but I have followed as much of it as I can. Some of the points that were raised draw parallels with the response to the cyberattack some days ago. We are being told repeatedly that there is information and knowledge in other countries but there is not always co-operation i sharing that information.

I understand people in Ireland have a genetic predisposition to CF. The witnesses have drawn our attention to other ailments that may not be on everyone's radar but that are suffered by people in this country. I am conscious that the clock is running down and, as such, I only have one question, which is for Ms McGrath. Do the educational programmes provided by the Royal College of Surgeons in Ireland, UCD and the other colleges where people undertake training in medicine deal too much with mainstream medicine and not sufficiently with rare diseases?

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