Oireachtas Joint and Select Committees

Wednesday, 26 May 2021

Joint Oireachtas Committee on Health

Rare Diseases: Discussion

Ms Vicky McGrath:

Yes. I have not given a huge amount of thought to personalised budgets so I am not sure if I would go that far. As an example, I know that some families would like to provide more care in their homes for their children. They would like to be trained on different things but they are not allowed to be because the system says "No". One could ask if that is a good use of the system. To me, that is a blockage if there are things that parents and families can do in their homes that mean children do not have to go to a hospital. We must ask whether that makes sense. That is thinking about the individuals and their families and what they can do.

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