Oireachtas Joint and Select Committees

Wednesday, 26 May 2021

Joint Oireachtas Committee on Health

Rare Diseases: Discussion

Ms Vicky McGrath:

I can speak to that for the Deputy and I thank him very much for asking. That report was commissioned in 2019 and I, along with some colleagues in other rare condition and disease organisations, met with Mazars and provided our input. The scope of the report was around how the systems are working within the HSE and the governance structures in place. None of us have had sight of the results of the report so it is difficult to determine whether any recommendations that might have been provided have been acted upon. We know that some of the personnel involved have changed in the intervening period and we do not know whether that was simply time to move on or was a recommendation from Mazars. It is quite galling to think that €80,000 plus was spent on a report-----

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