Oireachtas Joint and Select Committees

Wednesday, 26 May 2021

Joint Oireachtas Committee on Health

Rare Diseases: Discussion

Photo of Neasa HouriganNeasa Hourigan (Dublin Central, Green Party) | Oireachtas source

Okay, exactly. That is what I was trying to get to. I know they are not in place yet but I refer to access to particular registers, which may open the door to treatments or certain trials, or particularly, genetic counselling. I am mindful, particularly for families with small children, that genetic counselling often has on impact on the choices they will make, perhaps about having more children. Where there is not a full diagnosis, does that still all kick into place?

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