Oireachtas Joint and Select Committees

Wednesday, 26 May 2021

Joint Oireachtas Committee on Health

Rare Diseases: Discussion

Ms Vicky McGrath:

It has emerged over the last number of years. They have put in place the 100,000 Genomes Project, which is a strategy and plan to screen for genetic conditions in the UK. That is delivering for them. They recognise the need for geneticists and have built the infrastructure. They have been building it over the last number of years. That infrastructure has carried over to all of the nations in the United Kingdom. It is just something that we are clearly lacking in this country.

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