Oireachtas Joint and Select Committees

Wednesday, 26 May 2021

Joint Oireachtas Committee on Health

Rare Diseases: Discussion

Photo of Bernard DurkanBernard Durkan (Kildare North, Fine Gael) | Oireachtas source

I thank the witness for her presentation. It is stark and alarming, as it should be, because it brings to our attention in sharp focus the ever-growing, pressing need for investment in that area. Can I ask the opinion of Rare Diseases Ireland? To my mind, it looks as if a centre of excellence is required to deal with this particular issue. Laboratory facilities should be available here, rather than referring them overseas, with consequent delays. What is their preferred option in that area?

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