Dr. Aideen Hartney:

I totally understand the frustration of people with disabilities and their families who are living this experience and believe there is no need for a survey or research to give life to that. However, we are all familiar with the cliché that if it does not get measured, it does not get done. That is why we believe ongoing research and monitoring is important in driving change. While the pace of change might not be as fast as people would hope or as transformative, at least monitoring, research and guidance move us on a path of incremental change. This means, hopefully, that we can get to the shared goals and aims in the end.