Jennifer Carroll MacNeill (Dún Laoghaire, Fine Gael) | Oireachtas source

That is exactly the reason I asked the question.

It can be very difficult for outsiders who are not living with a condition or going through that as a family to really understand the importance of the supports that are being provided. I thank Dr. McCarthy for taking the time to do that. With specific regard to motor neurone disease, as has been said, the condition progresses very quickly so six months is an extremely long period to be without services. There can be significant changes within such a period. It is difficult for families to cope with that and remain resilient.

I have a couple of questions on Dr. Conaty's submission. On the second page he states, "The COVID response has exposed inadequacies of Ireland’s public policy in relation to" a number of listed areas. On the point he made about "the lack of appropriate data that would allow for more responsive decision-making", will he give an example of what he is talking about?