Ms Niamh Jones:

We have wonderful neurology teams in all our hospitals and we have very strong links with them. However, we are the only organisation in the country representing people with epilepsy. Once the epilepsy team has provided its education and support within the hospital environment, a patient is then out in the community. We now have a direct referral link with the HSE epilepsy team. We get the referrals, immediately contact them and tailor the response to the person's needs. No other organisation exists to deal specifically with epilepsy.